Patient and Public Involvement (PPIE)

Women's health research should be shaped by lived experience, not only academic or clinical priorities. At EVIE, patient and public involvement is embedded across everything we do – from deciding which questions to ask, to designing how we ask them, to interpreting what the answers mean for everyday care.

Why PPIE matters to us at EVIE

Women and families affected by the conditions we study bring insights that no researcher or clinician can fully replicate. Their priorities, preferences and experiences make our research more relevant, more acceptable, and ultimately more useful. Ngawai Moss, our PPI Lead, brings institutional expertise from the National Maternity and Perinatal Audit and the National Institute for Health and Care Research's (NIHR) INVOLVE network to ensure our PPI is meaningful and sustained.

How you can help shape our work

• Priority-setting – helping identify which research questions matter most to women and families.
• Reviewing study materials – participant information sheets, consent forms, questionnaires.
• Improving outcomes and acceptability – ensuring study designs and outcome measures reflect what matters to participants.
• Interpreting findings – contributing lay perspectives to how results are understood and communicated.
• Co-producing plain-language outputs – accessible summaries that reach beyond academic audiences.
• Supporting dissemination – sharing findings with community and charity networks.

Get involved

We welcome women, families and members of the public who would like to contribute to EVIE's research. There are many ways to get involved, regardless of your background or experience of research:

• Join a project advisory group – meet regularly to advise on a specific study.
• Help shape a research question &ndash contribute to a priority-setting exercise.
• Review patient-facing materials &ndash give feedback on participant information or questionnaires.
• Join a workshop or priority-setting event.
• Collaborate on dissemination &ndash help us communicate findings to the people who need them.

To find out more and/or get involved with current/upcoming projects, contact us.

Charity and community partnerships

We hold active partnerships with a network of women's health charities and advocacy organisations. These partnerships are central to how we set research priorities, recruit public contributors and disseminate our findings.

Organisations we've worked with include:

• Verity – The UK PCOS Charity
• Endometriosis UK
• Fibroid Forum UK
• The Fertility Alliance
• Progress Educational Trust (PET)
• Menopause Research and Education Fund (MREF)
• Menopause and Cancer CIC

If your organisation would like to explore a PPIE partnership, contact us.